Family Comfort Kits

CACNA1A-related disorders cause a lot of hospitalizations. Addilynn has been hospitalized for more days than we can count...Including four stays due to life-threatening neurological events.  We have developed a list of our favorite items and put them together for a Family Comfort Kit.  We deliver these to the pediatric floors of local hospitals.  In the fall of 2023, we are will be adding sponsoring a Family/Staff Meal on the pediatric floors of local hospitals.  Stay tuned for more details!

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Click below to find our Amazon Wish List!